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Who Else Here has Heart Failure?


Crystal Prism

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Hi, all.

So, on January 9, 2023, I was diagnosed with Heart Failure with Preserved Ejection Fraction and Pulmonary Hypertension. I am 37 years old, so I am uncharacteristically young for this. However, I have a brilliant nurse practitioner, who prescribed me furosemide and Entresto, and gave me a diet to follow: 2000 mg of sodium a day max, and 2750 ml of fluid a day max. I'm told that if I take my meds and follow the rules, I could live for years and years due to being so young. So, in other words, similar to a Type 2 Diabetic, only with sodium instead of sugar. :fluttershy:

Does anybody else here struggle with Heart Failure of any sort? :kindness:

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4 minutes ago, Crystal Prism said:

Hi, all.

So, on January 9, 2023, I was diagnosed with Heart Failure with Preserved Ejection Fraction and Pulmonary Hypertension. I am 37 years old, so I am uncharacteristically young for this. However, I have a brilliant nurse practitioner, who prescribed me furosemide and Entresto, and gave me a diet to follow: 2000 mg of sodium a day max, and 2750 ml of fluid a day max. I'm told that if I take my meds and follow the rules, I could live for years and years due to being so young. So, in other words, similar to a Type 2 Diabetic, only with sodium instead of sugar. :fluttershy:

Does anybody else here struggle with Heart Failure of any sort? :kindness:

My goodness! Sounds like you're a very strong soul who keeps going despite the challenges that life throws their way.... I'm proud of you! And yes, you may be too young to have it but at least that means you'll also be uncharacteristically able to fight it through. You've got this and I believe in you.

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@Princess Silky: Thank you so much! :kindness: I am doing my absolute best to trudge through life as best I can, and I am very good at following rules, so I think I'll be fine.

You are an absolute sweetheart! :kindness: Thank you so much for your vote of confidence. :fluttershy:

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1 minute ago, Crystal Prism said:

@Props ValRoa: Thank you so much. :fluttershy: Sadly, this condition will be with me until I die. :( Chronic conditions suck. But thank you so much for your encouragement and support! :kindness:

Do you have any idea what caused this - if you don't mind me asking? 

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@Props ValRoa: They're not quite sure. They are certain that the pulmonary hypertension caused the HFpEF, but they don't know what caused the pulmonary hypertension. They suspect sleep apnoea. I'll be getting a sleep study done in March.

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My family has a history of heart complications and cardiac arrest, but I don't really know about myself. My grandfather had a similar condition, and he lived until he was 72. So, just try to follow the professional advice, and I am certain you will live a long and fulfilling life.

Stay well, please.

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@They call me Loyalty: Thank you so much! I really appreciate it. :kindness:

If you have a family history, you should go to your PCP (main doctor) and get a referral to cardiology (heart doctors). They can help you figure yourself out. Your children (if you have any) will need this as well.

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Moments ago, Crystal Prism said:

@They call me Loyalty: Thank you so much! I really appreciate it. :kindness:

If you have a family history, you should go to your PCP (main doctor) and get a referral to cardiology (heart doctors). They can help you figure yourself out. Your children (if you have any) will need this as well.

I will do that. Thank you for the advice.

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2 hours ago, Princess Silky said:

My goodness! Sounds like you're a very strong soul who keeps going despite the challenges that life throws their way.... I'm proud of you! And yes, you may be too young to have it but at least that means you'll also be uncharacteristically able to fight it through. You've got this and I believe in you.

Sad that this is a part of life:(  But we all need to keep our heads up to face any challenges.  

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1 minute ago, ZiggWheelsManning said:

Sad that this is a part of life:(  But we all need to keep our heads up to face any challenges.  

Very true. :kindness:

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@Crystal PrismI'm so sorry you have to deal with a heart condition. One thing I am very glad to hear is that you have a good nurse practitioner. In my opinion, nurse practitioners are worth a hundred doctors and specialists any day of the week. Take your meds. see how they work for you and keep in touch with your nurse practitioner. Make sure you're both on the same page, especially if there are any changes or if any adjustments are needed with your meds. 

I have a (hopefully) mild heart condition that none of my many doctors or specialists have identified. My nurse practitioner came closest and prescribed Lisinopril, for some sort of irregular heartbeat, and it seems to have helped. I'm doing better now and I'm told that in time I may not need meds at all. The human body is capable of many wondrous things if given the chance. Monitor your condition, be patient and keep the faith. We're all rooting for you. 

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11 hours ago, Dreambiscuit said:

@Crystal PrismI'm so sorry you have to deal with a heart condition. One thing I am very glad to hear is that you have a good nurse practitioner. In my opinion, nurse practitioners are worth a hundred doctors and specialists any day of the week. Take your meds. see how they work for you and keep in touch with your nurse practitioner. Make sure you're both on the same page, especially if there are any changes or if any adjustments are needed with your meds. 

I have a (hopefully) mild heart condition that none of my many doctors or specialists have identified. My nurse practitioner came closest and prescribed Lisinopril, for some sort of irregular heartbeat, and it seems to have helped. I'm doing better now and I'm told that in time I may not need meds at all. The human body is capable of many wondrous things if given the chance. Monitor your condition, be patient and keep the faith. We're all rooting for you. 

Thank you so much! :kindness: Where I live, the quality of the provider depends purely on the provider, not the title. ;) Some doctors are amazing, while others suck. Same with specialists and nurse practitioners. Thankfully, the only sucky nurse practitioner I have that is sucky is my pulmonologist, and I rarely ever see them. ;)

You are right, the body is capable of amazing things. But it's not capable of curing heart failure, as that involves physical enlargement and damage to the heart muscle. I'll have this until I die, and I'm okay with that. :fluttershy: I chose to accept my condition and concurrent disability. ;) And don't you worry! I am stricter with myself than the hospital was when I was staying there. ;) I'll live for years and years.

Also, I am glad you are getting your condition treated. I hope your lisinopril keeps working well! :kindness: Lisinopril is an amazing medication and I'd suggest it to just about anybody as a first thing to try if they had relevant issues.

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1 hour ago, Crystal Prism said:

Thank you so much! :kindness: Where I live, the quality of the provider depends purely on the provider, not the title. ;) Some doctors are amazing, while others suck. Same with specialists and nurse practitioners. Thankfully, the only sucky nurse practitioner I have that is sucky is my pulmonologist, and I rarely ever see them. ;)

You are right, the body is capable of amazing things. But it's not capable of curing heart failure, as that involves physical enlargement and damage to the heart muscle. I'll have this until I die, and I'm okay with that. :fluttershy: I chose to accept my condition and concurrent disability. ;) And don't you worry! I am stricter with myself than the hospital was when I was staying there. ;) I'll live for years and years.

Also, I am glad you are getting your condition treated. I hope your lisinopril keeps working well! :kindness: Lisinopril is an amazing medication and I'd suggest it to just about anybody as a first thing to try if they had relevant issues.

Hope you feel better and continue being on life's journey:(  

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On 2023-02-17 at 2:08 PM, Crystal Prism said:

You are right, the body is capable of amazing things. But it's not capable of curing heart failure, as that involves physical enlargement and damage to the heart muscle. I'll have this until I die, and I'm okay with that. :fluttershy: I chose to accept my condition and concurrent disability. ;) And don't you worry! I am stricter with myself than the hospital was when I was staying there. ;) I'll live for years and years.

I'm so sorry for your ordeal, but I love your can-do attitude! I think that's better than all the medicine you could take. You're truly a remarkable person. 

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2 hours ago, Dreambiscuit said:

I'm so sorry for your ordeal, but I love your can-do attitude! I think that's better than all the medicine you could take. You're truly a remarkable person. 

Aww... Thank you. :kindness: You're a sweetheart. Thank you so much for your compassion and support! :fluttershy:

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While I don’t have the condition myself, I have met people who have it and I know it can be difficult to deal with. I commend those who struggle with it.

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