To give up something you love because it only endangers you, it must be painful. Many years ago a friend of mine died from an epileptic seizure, which was down to massive failures from emergency services, you can read about that here. I can only appreciate what you must have to avoid, and experiences you miss out on because of this. I sure hope that future medical advancements will bring in better treatments for this and you are able to experience what you are forced to miss out on.